We completed Jay's move to rehab, the next stage of the healing of his wounded brain. It feels like we have found a home. The other patients have also experienced brain or spinal chord injuries. It is inspiring to see where they are on their journey through recovery, and to be reassured that we too will get there. The capacity for recovery of the brain is remarkable. The healing of the brain brings the return of physical, cognitive, emotional, and speech skills, and each person has a different journey depending on the part of their brain that was injured.
Jay's team of doctors are AWESOME! One very cool young doctor is a Frenchman, and it amazed everyone when he and Jay spoke French together. This doctor has had his own struggle, as he is in a chair. Dr. Edgely was so welcoming and told Jay it is an honor and a pleasure to have him here. I know Jay is moved by the amazing people around him, both those who have overcome similar challenges, and staff who are passionate about helping people navigate through this transformative experience.
I can assure you that we are not at the Ritz. University Hospital is under major construction and within the year the rehab institute will be in a brand new beautiful facility with private rooms for all patients. For now we're in an old, crowded, archaic looking unit. It depressed me at first, but quickly you realize it's all about the people: staff who love to work there, and patients who are working hard to get their lives back. Family members are welcome as part of the team and I know that both Jay and I will be touched by the lives of others. Dev will love the BIG screen tv in the rec room. There is a lot going on in a small space and I fear the noise, activity, and lack of privacy will be hard on Jay, for he's a guy who loves to relax at home. But it is what it is and none of this has been easy.
I am staying at a very cool place. The University Guest House is a dorm like hotel on the University of Utah campus. Many other patients at the University Hospital and their family members use the Guest House as a home away from home. We have a common bond, and a sense of compassion and community. Families of U of U students, foreign students, conferencing professionals, academics, diverse college students, skiers, and this weekend, Sundance Film Festival folks, make this a comfortable and pleasant place to be. I was a bit jealous of Dev's college life, but I certainly didn't want to return to dorm living myself. You just never know........
Thanks SO much for the cards you've sent to Jay. He's just now starting to read them. He got the biggest kick out of a really funny Far Side card and has continued to make jokes about it. For some reason, his sense of humor is more keen than I ever remember it. If you see a really funny card, send it his way.
Dev is flying in from Denver tonight. She is going to be so thrilled when she sees her daddy. Tomorrow's Friday all you working folk. TGIF. Dawn
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wonderful to get such a detailed description of what things are like for you two, thanks Dawn
ReplyDeleteJay,
ReplyDeleteYou continue to inspire me everyday, I know the road is going to be hard but if there's anyone who can make the best of it all... it's you! I'm reading the Seven Storey Mountain like you suggested, although it's a bit daunting while on pain killers (it may have to wait until next week!), but I do look forward to getting into it. Your doctor's sound fantastic, I'm so happy to hear you have a passionate group looking after you. You deserve the best! I'm proud to be apart of the medical field, hearing stories like those you're encountering, and it makes me very glad to know you're in good hands.
Dawn, it takes a strong person to handle what you're going through, your love, compassion, and growth are all very apparent in your letters. Thank you so much for diligently putting the updates about both you and Jay up, I'm stoked to hear you have found a home of sorts at the hospital. It's great to find comfort in very uncomfortable times.
Like you said, the brain is an amazing organ that can adapt to a great deal of trauma. It's amazing the steps Jay has made so far and I look forward to hearing about the continued journey... both ups and downs. Your family is one I'm proud to know and I hold you all close everyday, the positive updates were wonderful to read coming out of my surgery as I had down time... I'm glad Dev will be in town soon. Take care all of you... Britt
Jay & Dawn--this is the 4th time I have tried to post--jsut wnat you to know I have been thinking of you both and that everyone in the RMAC is praying their own way for your quick and complete recovery. YOu were greatly missed in DC.
ReplyDeleteOK so now I have figured this out. I had to have my executive assistant's 8 year old explain it to me....It's great to be able to read about Jay's progress. I know, big guy, that you will get through this. I saw Cheryl Norton in DC and she send her best regards too and I also sent this link to Sam. Virginia jsut narrolwy escaped being hospitalized yesterday and if she wasn't so stubborn she would be there. I havea couple of boooks I had time to read over Christmas--I'll ship them out there. I am holding Some Johnny Walker blue to celebrate your return--more later!!! dave
ReplyDeleteDawn & Jay:
ReplyDeleteI called your office today and Celeste gave me the news and this blog site...Laura and I send all our LOVE and very best wishes for a quick and speedy recovery...We loved the Christmas card and the fabulous photos...
It just so happens that I am going to the SCU vs. University of San Francisco Hoops game tonight and will be sitting on the floor with Fred Lavo and Bruce Winkler...I will let everyone know about this blog site...
So, "Roomie, " I know I speak for all of your old team-mates when I say we love you, and be well very very soon...
John aka Dr. Murray...
831 588 9344
Jay & Dawn,
ReplyDeleteI know just how Dave Svakli feels! It took me FOREVER to fumble my way through posting and I think the first ones Cliff and I sent are under some of the first updates Dawn did rather than the most recent...sorry!
Anyway, as others have said, I am SO encouraged by all the reports about the hospital, your medical team and how well you are doing Jay. Dawn, your writing is so descriptive and uplifting. Thanks for letting us all be a part of your journey!
Love and prayers, Debi
Dawn –
ReplyDeleteI just wanted to let you know that the blogs have been incredibly meaningful to the Western family. While only 51 have actually signed up that they follow the blog, many, many more check for updates and share in discussion of our best wishes and prayers for you, Dev, and Jay. A constant theme is people wondering what they can do to help and support you and Jay. Thanks so much for these updates. Jess Young